Yesterday was definitely a day of highs & lows. I always knew we had great family & friends, but this experience has shown even more how Amazing, incredible & supportive they are. The visits, cards, flowers, gifts, calls, texts, help with the boys & the house, and most of all the love and prayers have been a Godsend to us. Gianna is blessed to have the love & support of so many incredible people!

All of the love & prayers really helped Matt & I get through some rough spots today. We got the results of G's MRI from the neurology team, and they were not very encouraging. In addition to the diagnosis we were already aware of, Gianna also has a spyrnix (it's like a cyst) on her brainstem near her spinal cord, an absent corpus collosum, and there is a small amount of brain tissue in her encephalocele. They can't really predict what all of this will mean for Gianna's development & prognosis. She'll have an MRI of her spine soon to see if there are additional cysts on her spinal column. All of this news was hard to take in, but what truly amazes me the most is how incredibly WELL she's doing despite all of these things going wrong in her brain. Other than being able to see the encephalocele, Gianna looks, feels, and acts just like a perfectly healthy baby! She is SO strong!

Surgery is scheduled for Monday so this weekend we're just going to concentrate on getting to love on her & spend as much time as possible with her!


Got to "dress her up" for the first time last night. Such a sweet girl!, Promise I will post some pics soon :-)