Gianna's homecoming is going to be delayed a little longer. When Matt & I got here this morning, the nurses told us that her head circumference measured larger over the evening, meaning that the CSF is increasing in her brain. So although we had hoped she may be able to do without it, the shunt is now a definite. Once the team of Drs. did their rounds this morning, we found out she will stay here for the weekend, will have the head ultrasound on Monday, and is scheduled for the shunt surgery on Tuesday. We've been told that the shunt surgery isn't as complicated/risky as the encephalocele surgery, but I still feel for her having to have 2 neurosurgeries in 8 days... Good news today though is that all came back ok on her kidney ultrasound. Apparently babies with encephaloceles often have kidney and optic nerve problems, but Gianna continues to beat the odds! Also, although I'm disappointed that we don't get to have her home for the weekend, I know she is so well taken care of here that it's the best place for her right now.
Amy . . . I literally fell on my knees when I found out about the miraculous outcome from the encephalocele surgery and I am so glad to hear that Gianna is thriving and continuing to beat the odds. PRAYER IS A POWERFUL and LOVING TOOL!!! I will continue to pray for my neice, and I can't wait to get back to KY to see her (and the other DiLorenzo kiddies). Kisses and love and ALWAYS prayers.
ReplyDeleteLori
Great news with the optic nerve and kidneys!! I know you must be disappointed that she is not getting to come home just yet but it will be even more joyous when she does! Gianna is such a little fighter...I think she must have alot of Maryrhea in her! :) What a great thing to have!
ReplyDeleteLove ya'll...Ashley