Seizure Free and Sassy




Finally got the call today from neurology and Gianna's EEG was normal!!  So we celebrated by (what else?) getting dressed up :-) I remember one of the neurologists in the NICU telling us that kids with agenesis of the corpus callosum (ACC) do not often have seizures(this is one of her diagnoses).  So this is definitely a silver lining for Gianna!  By the way - when researching more about this brain condition, I read that ACC is the disorder that Kim Peek (the man who was the inspiration for the movie Rain Man) had.  Like any disorder, there is a whole range of possibilities for the severity and prognosis.  So she won't necessarily have the same issues or abilities that he did, but I thought it was interesting anyway.  A few other updates:  her last appointment with the neurosurgeon went very well - he felt that she is healing nicely from both of her surgeries.  She'll go back after the holidays to have a CT scan to check the fluid in her ventricles.  Also, she got medically approved for the Kidz Club program!  I attended a seminar for parents at Shriner's Hospital last week, and met two other families who have children at Kidz Club in the infant room.  She's smiling some every day now (best part of the day!) and starting to be more alert.  It's amazing to me how fast she's growing - when her cousins Anne and Ashley sent her this tutu outfit, I thought it would be months before she could wear it, and now it fits perfectly!!